Quantcast
Channel: Recents posts in TFMR Rainbows on BabyCentre
Viewing all 4111 articles
Browse latest View live
↧

CVS tomorrow

September 24, 2017, 6:54 am
$
0
0
Mind a blur of unanswerable questions:

Will the baby have a heartbeat?

Will the dr be able to get a sample?

Will I miscarry a healthy baby after the procedure?

How will I cope with another bad news result?

Will I survive the hideous nausea if the baby is ok?

How will I cope with another baby if I have a good news result?

Do I even want to be a mother again?


Arghhhh! It's all so contradictory and ungrateful sounding. None of it makes any sense. I'm 42 now and had tfmr for t21 in march (let's face it, what else should I have expected at my age). Suffering awful nausea and stuffing myself full of horrible medication to make life tolerable. This poor baby. I'm happy in my little hopeful pregnant bubble but equally, I need to know what's going on. Roll on tomorrow. I needed that pointless rant off my chest. Sorry.

Big Fat Positive

↧
Search

Not sure how to feel

September 25, 2017, 11:05 am
$
0
0

So today, my husband and I went to see the regional specialist to decide on my care plan. 


Everything went really well and I am happy with the care plan in place. 


The biggest and most horrendous crunch however came quite early in the conversation. We were discussing previous pregnancies and came around to Nova and our TFMR. Any of you that know me from the main TFMR board know we decided on TFMR because our consultant gave us no chance, refused to refer us until very late on in the pregnancy and gave us awful 90% mortality statistics. 


We found out today that for want of a better phrase, she was talking bullshit. The treatment plan is intensive but we have a very good chance of having a healthy baby and this was the case with Nova too. Nova died for nothing. We made that decision on statistics that are 10 years out of date and given to us wrongly. I feel horrific. Livid. I feel like the rage is about to burst out of me.


OH, and to top it all off, there's nothing wrong with my husband! So she got that wrong too! 


My husband and I have decided that we are going to come down heavy on the hospital now and the legal route is being looked into. Luckily I still have my notes, so have written proof of what she said, the statistics she gave us, the lot. 


I cannot believe that we've been told the one thing no-one who has had a TFMR wants to hear. Your baby probably would have been fine. The situation was avoidable. 


Whilst I'm now cautiously optimistic about this pregnancy,  I now feel so so guilty about Nova. I feel like I've betrayed my baby. 


I didn't know whether this belonged on the TFMR board or on here, but didn't want to upset any of the ladies on the main board with news of our new pregnancy. 


Sorry ladies. Just no words for how I am feeling right now. xxx

Big Fat PositiveFirst smileMy baby is here

↧
↧

Amnio at 15 weeks

September 25, 2017, 12:56 pm
$
0
0
I'm 13 weeks and recently my daughters rare genetic defect has been discovered. Her geneticist has suggested an amnio at 15 weeks which I am going to take. It's the only way to know for sure if this baby is carrying the same gene.


Had an amnio with my daughter but at 31 weeks I was alot further along. Feeling quite scared but I know if I want answers it has to be done.

CrawlingMorning Sickness WarriorBig Fat PositiveRainbow

↧

June-July 2018

September 26, 2017, 2:40 am
$
0
0

Congratulations on your BFP!! I hope your pregnancy journey is happy and healthy. Use this thread to support each other.
Good luck and I hope you all get your rainbow 🌈

I know it's early but once you find out edd let me know xx


 


june


1st sweetie666

Pregnancy and Infant Loss

↧

CVS tomorrow UPDATED!

September 24, 2017, 6:54 am
$
0
0

Mind a blur of unanswerable questions:
Will the baby have a heartbeat?
Will the dr be able to get a sample?
Will I miscarry a healthy baby after the procedure?
How will I cope with another bad news result?
Will I survive the hideous nausea if the baby is ok?
How will I cope with another baby if I have a good news result?
Do I even want to be a mother again?

Arghhhh! It's all so contradictory and ungrateful sounding. None of it makes any sense. I'm 42 now and had tfmr for t21 in march (let's face it, what else should I have expected at my age). Suffering awful nausea and stuffing myself full of horrible medication to make life tolerable. This poor baby. I'm happy in my little hopeful pregnant bubble but equally, I need to know what's going on. Roll on tomorrow. I needed that pointless rant off my chest. Sorry.


 


so, after what felt like a very long wait, and a lot of single magpies flying deliberately into my path, I received the phonecall giving me good news; normal chromosomes 13, 18 and 21. I'm immensely relieved; far more than I'd anticipated. Phew! 

Big Fat Positive

↧
↧

Tentatively joining.....

September 27, 2017, 6:04 am
$
0
0
So as title says I'm very tentatively daring to join this group - got my bfp on Monday, which was delayed a bit as AF was due on the previous Friday, which was also my little angels due date. It was a tough weekend and I'd convinced myself that af was just late due to stress.

I don't feel happy, excited or anything at the moment, just shocked, scared, paranoid and waiting for something to go wrong.

My consultant recommended waiting until I have the NIPT at 10 weeks before booking in with a midwife or anything - seems forever away, not sure I'll be able to wait - is this normal advise do you think???
↧

February-March 2018

June 4, 2017, 10:51 am
$
0
0
Hi and congratulations on your bfp. Use this thread to support each other through what is sometimes a difficult and nerve racking time. Good luck and I wish you all a happy healthy pregnancy xx let me know your expected due date and I will add to a list.



February

3rd: violet32

3rd: km8163

14th: xniffx

16th: munch19791

21st: sunflower783


March

12th: lw2017

27th: suzyburl

25th: sophiaskye

31st: catherinesays
↧

Clear blue still 1-2 worried

September 28, 2017, 5:38 am
$
0
0

Ok, im driving myself crazy with worry already!!! When I tested my last pregnancy (which unfortunately ended in tfmr) I remember the clear blue saying 2-3 straight away. With this one I tested 3 days post af so was surprised it only said 1-2, but happy to see I was pregnant. Today I should definitely be 5 weeks, so I've tested again and I still says 1-2 ☹️ Also boobs no longer sore etc. Pretty sure something is wrong. I've just ordered a load of cheap tests as these clear blue are so expensive.  Been googling a lot, this seems a common problem, but quite a lot do seem to have ended badly :-(

↧
Search

October-November 2017 Rainbow Due dates

February 11, 2017, 6:30 am
$
0
0

Congratulations to everyone due their rainbow in either October or November. You're very welcome to TFMR Rainbow board. I wish you all a happy, safe and enjoyable pregnancy. Feel free to post any updates and tell us how you're getting on. We all know that having a rainbow pregnancy can be a very stressful and anxious time but you'll be able to share your experiences and worries with other mums who are due at the same time.

If you want to let me know when you're due I can update it on our due date list.

Best of luck and lots of love

Karen xxx


 


September


23rd - Carlywaller


 


October


1st - KIWINICI


2nd - Poppymum1


6th - Jaynee31


10th - MiniToeBeans


23rd - SF111


 


November


3rd – Kitty47


6th - Monkeypod


6th - Sorelin

↧
↧

Baby pic Saturday

August 5, 2017, 12:23 pm
$
0
0
I think we should do a baby Saturday so we can see our little ones grow each week! Any excuse to post cute pics ay!

I'll start here is my little man today at 8 weeks and 4 days 💙💙

XpJfypQ1EQ7pMQrka4yihLgRtTQH3g4g_lg.jpg

Halfway ThereBaby ShowerBaby DustBig Fat Positive

↧

how long after tfmr were your rainbows concieved? NEED PMA!!!

October 5, 2014, 7:28 am
$
0
0
Hi ladies, congrats on all your beautiful rainbows... Im just after some PMA .

we are Currently starting ttc again after losing our first born baby boy to spina bifida at 21 weeks in august. As you all know its such an incredibly difficult time and i truly don't think i will feel happy again until we get our rainbow! ... So just wondering:

- when your tfmr was

- how long you waited to ttc

- how long it took you to conceive your rainbow


thanks in advance xx
↧

Newbie...surprised, happy & sad.

October 4, 2017, 2:05 am
$
0
0
Hello everyone!


Just joined this board. I'm only 13 weeks on from our tfmr due to ACC and severe ventriculomegaly. Our angel Lola was born at 29weeks.


Myself and OH decided that we wouldn't go back on any contraception and just wait and see what happens. Neither of us expected it to be so soon as it took a year with our 3 year old and 8 months with Lola so we are both so shocked that I'm pregnant so soon after.


I'm not really sure how I feel. I'm happy but so sad at the same time. I can't help thinking everyone is going to judge us and think we are moving on or replacing Lola. We are obviously going ahead with the pregnancy, not having the baby hasn't even crossed our minds but I'm not sure I'm 100% emotionally ready. I still miss Lola so much and although I'm not crying everyday like I was, I still feel a huge amount of grief. I'm hoping I'm not alone in feeling like this.


All I wanted was to be pregnant again and I hoped it would happen quick but now that I am I'm just feeling so confused and emotional.


Did anyone else get pregnant with their rainbows so soon after? Or anyone else feeling the same as me? Would love to hear from you! X
↧

Returning and praying I'm staying this time!

October 15, 2017, 3:01 pm
$
0
0
Hi all,

I don't know if any of you will remember but I joined in August when I got a BFP after 12 months of trying with no success. It was short lived as a week later I started bleeding and was told it was a chemical pregnancy. A month later I was utterly shocked to get another BFP!! I'm 8 weeks today and a nervous wreck! However my symptoms are strong and i'm trying to remain hopeful.

We lost our son Max in July 2016. He was my 3rd angel baby. We have a son who is 3 and the light of my life.

I truly hope this time I will be here until the end and getting to meet my second rainbow. Xx
↧
↧

So Anxious I think I'm going crazy :(

October 18, 2017, 11:53 am
$
0
0

Hi ladies,

I hope you are all well. I've been lurking for a while here but never plucked up the courage to post. However after today's breakdown I feel it's time for me to open up and see if any of you ladies feel the same or can offer any advise.

I feel like I'm going crazy and sick with anxiety and worry :( I had a TFMR in January this year of a much wanted and loved baby, with a spina bifida diagnosis which they said was the most serious form. It was absolutely heartbreaking, I was 16 weeks pregnant and gave birth to my tiny but perfect little boy and we were able to give him a funeral. However, ever since then I haven't been myself at all - I cry myself to sleep still and wish things could have been different and I had my baby boy in my arms healthy.

Fast forward 9 months on, I'm now pregnant again - 9 weeks and 2 days. Im constantly worried sick something is going to happen again. I've been taking my high dosage of folic acid since Jan and have been very good with my diet since I lost my baby. But I still worry myself and cry that I will never take home a healthy baby.

Ladies please kindly share your positive stories with me, I really need it :( how likely will this happen again? I'm so scared and I feel I just can't relax in this pregnancy. I was a wreck in my booking in appointment today with the midwife xxx

Morning Sickness WarriorPregnancy and Infant LossFirst Ultrasound/HeartbeatBig Fat Positive

↧

CVS tomorrow UPDATED!

September 24, 2017, 6:54 am
$
0
0

Mind a blur of unanswerable questions:
Will the baby have a heartbeat?
Will the dr be able to get a sample?
Will I miscarry a healthy baby after the procedure?
How will I cope with another bad news result?
Will I survive the hideous nausea if the baby is ok?
How will I cope with another baby if I have a good news result?
Do I even want to be a mother again?

Arghhhh! It's all so contradictory and ungrateful sounding. None of it makes any sense. I'm 42 now and had tfmr for t21 in march (let's face it, what else should I have expected at my age). Suffering awful nausea and stuffing myself full of horrible medication to make life tolerable. This poor baby. I'm happy in my little hopeful pregnant bubble but equally, I need to know what's going on. Roll on tomorrow. I needed that pointless rant off my chest. Sorry.


 


so, after what felt like a very long wait, and a lot of single magpies flying deliberately into my path, I received the phonecall giving me good news; normal chromosomes 13, 18 and 21. I'm immensely relieved; far more than I'd anticipated. Phew! 

Big Fat Positive

↧
Search

Here for the second time!

September 23, 2017, 1:45 am
$
0
0
So I had my tfmr in 2014. My son Jack was born at 24 weeks. He had an undiagnosed condition which resulted in severe brain malformations.

In 2015 I had my daughter who also has an undiagnosed genetic condition. Her brain also has changes. It's almost like a milder version of what Jack had. She's developmentally delayed and very small but she's a happy, active little lady.

In August I found out I was pregnant with a surprise baby! I am very happy but very very scared. I am on my birth board but I don't think you could possibly understand how someone like us feels unless you've been through it, so if you don't mind, I would like to join you all again (I was here when pregnant with violet).

Here is a pic of Violet... She's a typical 2 year old!

gMA5E2NQYPY8P5mmC1R5Y6ADzHJeSFSo_lg.jpg

CrawlingMorning Sickness WarriorBig Fat PositiveRainbow

↧

December- January 2017/18 due dates

April 3, 2017, 5:16 am
$
0
0
Hi and congratulations on your bfp. Use this thread to support each other through what is sometimes a difficult and nerve raking time. Good luck and I wish you all a happy healthy pregnancy xx let me know your expected due date and I will add to the list.


December


January

5th crowtherpants

25th emilyreedybah
↧
↧

February-March 2018

June 4, 2017, 10:51 am
$
0
0
Hi and congratulations on your bfp. Use this thread to support each other through what is sometimes a difficult and nerve racking time. Good luck and I wish you all a happy healthy pregnancy xx let me know your expected due date and I will add to a list.



February

3rd: violet32

3rd: km8163

14th: xniffx

16th: munch19791

21st: sunflower783


March

12th: lw2017

27th: suzyburl

25th: sophiaskye

31st: catherinesays
↧

16 week scan today

October 23, 2017, 12:09 pm
$
0
0
Hi all. I had my tfmr in February this year for spina bifida and ventriculomegally.

16 week scan done today. Brain and spine has developed as it should or 'No obvious abnormalities' anyway. They didn't do a full antomy scan but did see a stomach bladder and kidneys which was also good showing the baby is swallowing and urinating okay. I still don't feel fully relieved. I still feel full of anxiety. I was hoping this would of lifted by this stage. I hope it will by the 20 week scan in 4 long weeks. But truthfully i think my whole pregnancy is going to be full of anxiety. I just want to be able to enjoy it and it makes me sad and guilty to say that I'm not. I love being pregnant but I just can't anymore. If this is our bring home rainbow baby I won't be having more. I can't put myself through this again. Xx

lpaBpRKZApWWsLKSoDZo4Sl01obsLmGg_lg.jpg

First Ultrasound/HeartbeatBig Fat PositiveTTCPregnancy and Infant Loss

↧

12 week screening

October 24, 2017, 11:12 am
$
0
0
Hi ladies,

I have my booking in with the midwife next Monday, 30th. When she called me she said they would talk to me about screening when they come out. I don’t think she had my history in front of her in all honesty! Anyway... I had my tfmr in July 16 as our son had a complete Avsd and T21. It was the Avsd that made our decision for us, not the Downs sysndrome. Does anyone know much about the screening? I’m 42 (just turned) and have had T21 in my last pregnancy. Will that automatically make me high risk for T21 again? Last time I showed as 1:5. I won’t have an amino due to my history of miscarriage so I’m unsure what to do about the screening. I guess I should still have it but will I show as high risk anyway?? I’m trying to stay positive, I’ve had no early scan so I’m literally going to be off to my 12 weeks scan with everything to lose at that point if it all goes wrong again!! I’m dreading it and terrified and that’s before I even have a date for it!!! X
↧
Viewing all 4111 articles
Browse latest View live
Search