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Anyone pregnant again after TFMR for Spina Bifida?

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Hi all,


Just wondering if there anyone out there is in the same position as me and if so, If there are any lovely ladies who would like to support each other through this topsy turvy rainbow journey?


I’m currently 14 weeks 2 days with our rainbow. We lost our son Rupert at 21 weeks 4 days on June 11th to Spina Bifida (myelomeningocele), Hydrochephalus (fluid on the brain), and Arnold Chiari II Malformation (prolapsed brain). This was the hardest thing I’ve ever gone through and still have incredibly dark days. Neither me or my husband have a history of SB and I took the regular dose of folic acid 3 months prior to conception. We’ve simply been told it was just ‘nature’s cruelest role of the dice’.



We started taking 5mg of folic acid and pregnacare Max with inositol straight away and then we fell pregnant in October, we found out 2 days before Rupert's Due date.



All appeared ok at our 12 week scan but we know nothing can be spotted until 16 weeks. We have a specialist scan with fetal medicine on January 4th. I’m extremely scared about the scan simply because everything is so far out of our control. I also have PTSD around the scan. My heart was a beating mess during our 12 week scan and I was incredibly emotional. I don’t know how my heart would cope if we were to receive more bad news.


I was just hoping that by sharing our story that perhaps someone might be able to say ‘me too’ and we can middle through together?

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