Looking for advice from women that were given reoccurrence statistics and odds and still got their rainbow. What will be will be but maybe hearing from people who against all odds got their rainbows might settle me.
You know my story two wee girls lost to severe spina bifida and 90% odds that this bean should be fine but what about the 10%. I am petrified. I'm trying to visualise the new baby, with the new baby smell and showing it off to everyone that's had our back since we lost Amy and then my rainbow Katie but all I keep feeling in the pit of my stomach is the words I have already heard twice.
We are actually consultant lead this time at a different hospital not the stupid version of consultant lead that we had last time that meant we never seen the consultant and the sonographer didn't have a clue what she was looking at, leading us to believe at 16 weeks that Katie was fine, only to find out at 20 weeks that she was far from fine.
So we will know our babies future by 14 weeks according to the consultant. That's 6 weeks and 6 days away.
I don't want to be on rainbows and have to leave again without my rainbow. I am a mum yes but I want to be an earth mum to Amy and Katie's wee brother or sister. Please stay and be healthy little bean. God knows I've tried: 5mg folic acid, ate spinach till it's coming out my ears, fortified cereals, vit d, zinc, exercise, I've also tried to de-stress.
I know one thing our fate is sealed, I pray that the neural tube closed properly on day 28 and that your coming home with us, you are so wanted and you will take a lot of people's lives on a new path if you come to be.
Please come home baby. 🙏🌈
Amy born 14/06/14 & Katie born 05/03/15 both TFMR severe spina bifida. Look after each other my angels and thank you for this gift I am carrying.
You know my story two wee girls lost to severe spina bifida and 90% odds that this bean should be fine but what about the 10%. I am petrified. I'm trying to visualise the new baby, with the new baby smell and showing it off to everyone that's had our back since we lost Amy and then my rainbow Katie but all I keep feeling in the pit of my stomach is the words I have already heard twice.
We are actually consultant lead this time at a different hospital not the stupid version of consultant lead that we had last time that meant we never seen the consultant and the sonographer didn't have a clue what she was looking at, leading us to believe at 16 weeks that Katie was fine, only to find out at 20 weeks that she was far from fine.
So we will know our babies future by 14 weeks according to the consultant. That's 6 weeks and 6 days away.
I don't want to be on rainbows and have to leave again without my rainbow. I am a mum yes but I want to be an earth mum to Amy and Katie's wee brother or sister. Please stay and be healthy little bean. God knows I've tried: 5mg folic acid, ate spinach till it's coming out my ears, fortified cereals, vit d, zinc, exercise, I've also tried to de-stress.
I know one thing our fate is sealed, I pray that the neural tube closed properly on day 28 and that your coming home with us, you are so wanted and you will take a lot of people's lives on a new path if you come to be.
Please come home baby. 🙏🌈
Amy born 14/06/14 & Katie born 05/03/15 both TFMR severe spina bifida. Look after each other my angels and thank you for this gift I am carrying.